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The Contemplations, Rants & Reminiscences of DavidB327

Something Sensational To Read On The Train

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Photopsia Update
Some time ago I switched from taking Phenytoin at night to the morning. I thought this would fit in better with my daily schedule. I have not noticed any discernible difference from taking the medication in this way, although the photopsia has fluctuated significantly over the last few weeks. It’s difficult really to make an assessment under such circumstances.

It is well known that the photopsia is affected by stress, and my own experience over the last 9 years would certainly support that. Over the past few weeks I have been quite stressed out.

Given the current economic climate, it was not surprising when the news broke a couple of months ago about the latest reorganisation, and hence wave of redundancies. As it turned out I need not have worried. Nevertheless I have previously been subject to a rather nasty attempt at constructive dismissal, I could not help being concerned. Most of us have done little constructive work over the past 2 months, although I am now getting back on track and am able to concentrate again and focus on what I need to do.

Symptoms of stress include difficulty in sleeping, and so it is with me. I can fall asleep, but keep getting woken up after having a nightmare. Last night was no exception. In this nightmare I was pressured to resign from work. I was deeply upset after resigning, and desperately trying to get my old job back. What made this worse was that my own union representative was the one who persuaded me to resign!

Some days when I wake up the photopsia is incredibly intense, several times worse than it normally is, which in itself is very bad. At the same time I also get tinnitus. The combination of the two drives me mad, but I know that if I wake up in this way, it will be like this for the rest of the day. This is how it is right now. What a bummer.

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Sorry to hear that you're stressed out... I know how that exacerbates negative things.

I get tinnitus soemtimes, also, but thought it was a side-effect of the clonazepam I take. Is there a correlation between RP (and or photopsia) and tinnitus?


It’s difficult to generalize, as there are 120 or so different conditions under the umbrella term Retinitis Pigmentosa. Although the effects on eyesight are of course the most significant symptoms, tinnitus occurs in some cases, usually I believe in ‘end state’ RP. Fortunately for me the tinnitus is an occasional problem.

I won’t be stressed out for long. I like to think (despite my rants) that on the whole I am a positive person, and I usually bounce back pretty quickly.At times like this I do tend to turn to DCD. I always find their music to be so uplifting.



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