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International Alopecia Day
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davidbr1

Yesterday was International Alopecia Day.    It’s good that attempts are being made to raise awareness of alopecia, which affects more people than one might at first imagine.  I have been through my own life changing experience, so I can understand how upsetting it must be for people that are affected by alopecia.  Nevertheless I do feel that in attempting to educate the wider public, it’s not helpful when individuals overstate the case.

http://www.walesonline.co.uk/showbiz-and-lifestyle/style-and-shopping-in-wales/2010/07/03/losing-my-hair-was-like-a-bereavement-91466-26775560/

 It is annoying when the effects of the symptoms of alopecia are compared to bereavement, or “the worst thing that could happen to a woman”.  Such statements are (I hope) not meant to be taken literally.  As someone originally able bodied that became blind due to a genetic disorder, I can certainly testify that there are worse things that could happen than losing one’s hair.  Furthermore having lost my father (whom I dearly loved) in November 2007, bereavement is much, much worse.

 I am not trying to belittle the devastating effect it will have on some people.  Clearly some will cope with alopecia better than others, but one does have to put things into perspective.  Oddly enough, I have known people that developed alopecia, and whilst they did not want to lose their hair at all, after it happened actually preferred being bald, and did not want it to grow back again.



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As you might imagine, I totally agree with your feelign that hair loss needs to be put in perspective. Like bereavement? Uh, no. I can think of dozens of things that could happen to a woman that would be worse than losing her hair. I also dislike all the references to a woman's hair as her crowning glory (what is this, 1312?). I of course applaud raising awareness of the disorder and can understand the loss a woman could feel if she has put so much stock in her long hair as a marker of her beauty and femininity (not something I myself buy into, but I know others do), but this just seems a bit overwrought in spots.

I imagine that this is symptomatic of people with low self esteem being dragged down by an issue that stronger people would learn to live with. Everyone that has a life changing experience goes through the “Why me?” stage. It take a while to come to terms with your predicament, and in my case quite a while as there were contributory factors that made coping all the more difficult. Nevertheless there comes a point when you just have to get on with your life. Turning the clock back is not an option.

Wishing you a happy birthday. I hope it's just as wonderful as you. :)

Re: Happy Birthday!

Thank you! I intend to have a very good time.

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